Thursday, 21 November 2013

#4~ Nov 21: Infertility Etiquette

This post is long.. Probably will take you 10 minutes to read.. But don't skip it.. Like the last post, the article I want to share here is super helpful in understanding that one person...

I came across this article thanks to a friend who posted it on one of her comments on this blog.. I found it amazing and I wanted to share it here.

This sort of information can be such a lifesaver for someone struggling or someone trying to support someone in that stage of life. Sharing makes me feel like I didn't go through this for nothing, my story and the lessons I have learned have already helped a few and I find STRENGTH in that...


The article comes from the national infertility association and is full of great information. The info that Jody Early wrote in her Guide for Family and Friends (Third entry) is about understanding and needs. This below is on infertility etiquette and makes many good points (some points are the same that I've made, some are different). It is all very good. 

Even I, who lives through this, found more understanding as I read it. I learned a few things about myself and that struggle... The first paragraph of the article just hits it bang on (In trying to explain my pain in previous years, I have often said that it was like loosing someone that I love, like someone died and I usually got some strange looks after saying that... Well, looks like I'm not the only one feeling that kind of grieving and that was comforting and validating to me..) Also I never really understood why we couldn't make the decision to adopt, the point on that further down also hits it bang on (Not the part about being unable to love another person's child, the other part)... Thanks Kimberly for sharing this link!

I was once told by another person grieving her own infertility that I couldn't possibly feel this way as I already had a child, she didn't.. I was shocked that something so insensitive could come from someone who knew the heartache. We all experience infertility differently. We all have different circumstances. Some of us conceive but have miscarriages, some of us conceive and go to term once and that's it (like me~ It's been interesting to see that not all but many of the other ladies I know who only have one child are dealing with levels of this very thing), some of us don't conceive at all.. All different but the pain, the hope and despair, the grief still remains. We all lost a dream or part of that dream. We all have a different story, but it hurts just the same! It is too bad that some have the need to say that they are hurting more! It's not about who is hurting more, it is about supporting each other through this...

After all of this posting and sharing, Dwayne and I got talking again about the different options out there. I got to reconnect with a few friends who contacted me after the blog became public, that was nice. Some have taken the IVF route or are in the process right now, some have taken the adoption route, some have said No More.. At this point I don't know how we feel about IVF and adoption, all I know is that no more still sounds wrong.. Who knows where we will be in 6 months though, still hoping, still trying...


Well, enjoy the rest:

Infertility Etiquette

Chances are, you know someone who is struggling with infertility. More than seven million people of childbearing age in the United States experience infertility. Yet, as a society, we are woefully uninformed about how to best provide emotional support for our loved ones during this painful time.
Infertility is, indeed, a very painful struggle. The pain is similar to the grief over losing a loved one, but it is unique because it is a recurring grief. When a loved one dies, he isn't coming back. There is no hope that he will come back from the dead. You must work through the stages of grief, accept that you will never see this person again, and move on with your life.

The grief of infertility is not so cut and dry. Infertile people grieve the loss of the baby that they may never know. They grieve the loss of that baby who would have had mommy's nose and daddy's eyes. But, each month, there is the hope that maybe that baby will be conceived after all. No matter how hard they try to prepare themselves for bad news, they still hope that this month will be different. Then, the bad news comes again, and the grief washes over the infertile couple anew. This process happens month after month, year after year. It is like having a deep cut that keeps getting opened right when it starts to heal.

As the couple moves into infertility treatments, the pain increases while the bank account depletes. The tests are invasive and embarrassing to both parties, and you feel like the doctor has taken over your bedroom. And for all of this discomfort, you pay a lot of money.
A couple will eventually resolve the infertility problem in one of three ways:
  • They will eventually conceive a baby.
  • They will stop the infertility treatments and choose to live without children.
  • They will find an alternative way to parent, such as by adopting a child or becoming a foster parent.
Reaching a resolution can take years, so your infertile loved ones need your emotional support during this journey. Most people don't know what to say, so they wind up saying the wrong thing, which only makes the journey so much harder for their loved ones. Knowing what not to say is half of the battle to providing support.

Don't Tell Them to Relax
Everyone knows someone who had trouble conceiving but then finally became pregnant once she "relaxed." Couples who are able to conceive after a few months of "relaxing" are not infertile. By definition, a couple is not diagnosed as "infertile" until they have tried unsuccessfully to become pregnant for a full year. In fact, most infertility specialists will not treat a couple for infertility until they have tried to become pregnant for a year. This year weeds out the people who aren't infertile but just need to "relax." Those that remain are truly infertile.

Comments such as "just relax" or "try going on a cruise" create even more stress for the infertile couple, particularly the woman. The woman feels like she is doing something wrong when, in fact, there is a good chance that there is a physical problem preventing her from becoming pregnant.
These comments can also reach the point of absurdity. As a couple, my husband and I underwent two surgeries, numerous inseminations, hormone treatments, and four years of poking and prodding by doctors. Yet, people still continued to say things like, "If you just relaxed on a cruise . . ." Infertility is a diagnosable medical problem that must be treated by a doctor, and even with treatment, many couples will NEVER successfully conceive a child. Relaxation itself does not cure medical infertility.

Don't Minimize the Problem
Failure to conceive a baby is a very painful journey. Infertile couples are surrounded by families with children. These couples watch their friends give birth to two or three children, and they watch those children grow while the couple goes home to the silence of an empty house. These couples see all of the joy that a child brings into someone's life, and they feel the emptiness of not being able to experience the same joy.

Comments like, "Just enjoy being able to sleep late . . . .travel . . etc.," do not offer comfort. Instead, these comments make infertile people feel like you are minimizing their pain. You wouldn't tell somebody whose parent just died to be thankful that he no longer has to buy Father's Day or Mother's Day cards. Losing that one obligation doesn't even begin to compensate for the incredible loss of losing a parent. In the same vein, being able to sleep late or travel does not provide comfort to somebody who desperately wants a child.

Don't Say There Are Worse Things That Could Happen
Along the same lines, don't tell your friend that there are worse things that she could be going through. Who is the final authority on what is the "worst" thing that could happen to someone? Is it going through a divorce? Watching a loved one die? Getting raped? Losing a job?

Different people react to different life experiences in different ways. To someone who has trained his whole life for the Olympics, the "worst" thing might be experiencing an injury the week before the event. To someone who has walked away from her career to become a stay-at-home wife for 40 years, watching her husband leave her for a younger woman might be the "worst" thing. And, to a woman whose sole goal in life has been to love and nurture a child, infertility may indeed be the "worst" thing that could happen.

People wouldn't dream of telling someone whose parent just died, "It could be worse: both of your parents could be dead." Such a comment would be considered cruel rather than comforting. In the same vein, don't tell your friend that she could be going through worse things than infertility.

Don't Say They Aren't Meant to Be Parents
One of the cruelest things anyone ever said to me is, "Maybe God doesn't intend for you to be a mother." How incredibly insensitive to imply that I would be such a bad mother that God felt the need to divinely sterilize me. If God were in the business of divinely sterilizing women, don't you think he would prevent the pregnancies that end in abortions? Or wouldn't he sterilize the women who wind up neglecting and abusing their children? Even if you aren't religious, the "maybe it's not meant to be" comments are not comforting. Infertility is a medical condition, not a punishment from God or Mother Nature.

Don't Ask Why They Aren't Trying IVF
In vitro fertilization (IVF) is a method in which the woman harvests multiple eggs, which are then combined with the man's sperm in a petri dish. This is a method that can produce multiple births. People frequently ask, "Why don't you just try IVF?" in the same casual tone they would use to ask, "Why don't you try shopping at another store?"

Don't Be Crude
It is appalling that I even have to include this paragraph, but some of you need to hear this-Don't make crude jokes about your friend's vulnerable position. Crude comments like "I'll donate the sperm" or "Make sure the doctor uses your sperm for the insemination" are not funny, and they only irritate your friends.

Don't Complain About Your Pregnancy
This message is for pregnant women-Just being around you is painful for your infertile friends. Seeing your belly grow is a constant reminder of what your infertile friend cannot have. Unless an infertile women plans to spend her life in a cave, she has to find a way to interact with pregnant women. However, there are things you can do as her friend to make it easier.

The number one rule is DON'T COMPLAIN ABOUT YOUR PREGNANCY. I understand from my friends that, when you are pregnant, your hormones are going crazy and you experience a lot of discomfort, such as queasiness, stretch marks, and fatigue. You have every right to vent about the discomforts to any one else in your life, but don't put your infertile friend in the position of comforting you.

Your infertile friend would give anything to experience the discomforts you are enduring because those discomforts come from a baby growing inside of you. When I heard a pregnant woman complain about morning sickness, I would think, "I'd gladly throw up for nine straight months if it meant I could have a baby." When a pregnant woman would complain about her weight gain, I would think, "I would cut off my arm if I could be in your shoes."

I managed to go to baby showers and hospitals to welcome my friends' new babies, but it was hard. Without exception, it was hard. Stay sensitive to your infertile friend's emotions, and give her the leeway that she needs to be happy for you while she cries for herself. If she can't bring herself to hold your new baby, give her time. She isn't rejecting you or your new baby; she is just trying to work her way through her pain to show sincere joy for you. The fact that she is willing to endure such pain in order to celebrate your new baby with you speaks volumes about how much your friendship means to her.

Don't Treat Them Like They Are Ignorant
For some reason, some people seem to think that infertility causes a person to become unrealistic about the responsibilities of parenthood. I don't follow the logic, but several people told me that I wouldn't ache for a baby so much if I appreciated how much responsibility was involved in parenting.
Let's face it-no one can fully appreciate the responsibilities involved in parenting until they are, themselves, parents. That is true whether you successfully conceived after one month or after 10 years. The length of time you spend waiting for that baby does not factor in to your appreciation of responsibility. If anything, people who have been trying to become pregnant longer have had more time to think about those responsibilities. They have also probably been around lots of babies as their friends started their families.

Perhaps part of what fuels this perception is that infertile couples have a longer time to "dream" about what being a parent will be like. Like every other couple, we have our fantasies-my child will sleep through the night, would never have a tantrum in public, and will always eat his vegetables. Let us have our fantasies. Those fantasies are some of the few parent-to-be perks that we have-let us have them. You can give us your knowing looks when we discover the truth later.

Don't Gossip About Your Friend's Condition
Infertility treatments are very private and embarrassing, which is why many couples choose to undergo these treatments in secret. Men especially are very sensitive to letting people know about infertility testing, such as sperm counts. Gossiping about infertility is not usually done in a malicious manner. The gossipers are usually well-meaning people who are only trying to find out more about infertility so they can help their loved ones.

Regardless of why you are sharing this information with someone else, it hurts and embarrasses your friend to find out that Madge the bank teller knows what your husband's sperm count is and when your next period is expected. Infertility is something that should be kept as private as your friend wants to keep it. Respect your friend's privacy, and don't share any information that your friend hasn't authorized.

Don't Push Adoption (Yet)
Adoption is a wonderful way for infertile people to become parents. (As an adoptive parent, I can fully vouch for this!!) However, the couple needs to work through many issues before they will be ready to make an adoption decision. Before they can make the decision to love a "stranger's baby," they must first grieve the loss of that baby with Daddy's eyes and Mommy's nose. Adoption social workers recognize the importance of the grieving process. When my husband and I went for our initial adoption interview, we expected the first question to be, "Why do you want to adopt a baby?" Instead, the question was, "Have you grieved the loss of your biological child yet?" Our social worker emphasized how important it is to shut one door before you open another.

You do, indeed, need to grieve this loss before you are ready to start the adoption process. The adoption process is very long and expensive, and it is not an easy road. So, the couple needs to be very sure that they can let go of the hope of a biological child and that they can love an adopted baby. This takes time, and some couples are never able to reach this point. If your friend cannot love a baby that isn't her "own," then adoption isn't the right decision for her, and it is certainly not what is best for the baby.

Mentioning adoption in passing can be a comfort to some couples. (The only words that ever offered me comfort were from my sister, who said, "Whether through pregnancy or adoption, you will be a mother one day.") However, "pushing" the issue can frustrate your friend. So, mention the idea in passing if it seems appropriate, and then drop it. When your friend is ready to talk about adoption, she will raise the issue herself.

So, what can you say to your infertile friends? Unless you say "I am giving you this baby," there is nothing you can say that will erase their pain. So, take that pressure off of yourself. It isn't your job to erase their pain, but there is a lot you can do to lessen the load. Here are a few ideas.

Let Them Know That You Care
The best thing you can do is let your infertile friends know that you care. Send them cards. Let them cry on your shoulder. If they are religious, let them know you are praying for them. Offer the same support you would offer a friend who has lost a loved one. Just knowing they can count on you to be there for them lightens the load and lets them know that they aren't going through this alone.

Remember Them on Mother's Day
With all of the activity on Mother's Day, people tend to forget about women who cannot become mothers. Mother's Day is an incredibly painful time for infertile women. You cannot get away from it-There are ads on the TV, posters at the stores, church sermons devoted to celebrating motherhood, and all of the plans for celebrating with your own mother and mother-in-law.

Mother's Day is an important celebration and one that I relish now that I am a mother. However, it was very painful while I was waiting for my baby. Remember your infertile friends on Mother's Day, and send them a card to let them know you are thinking of them. They will appreciate knowing that you haven't "forgotten" them.

Support Their Decision to Stop Treatments
No couple can endure infertility treatments forever. At some point, they will stop. This is an agonizing decision to make, and it involves even more grief. Even if the couple chooses to adopt a baby, they must still first grieve the loss of that baby who would have had mommy's nose and daddy's eyes.

Once the couple has made the decision to stop treatments, support their decision. Don't encourage them to try again, and don't discourage them from adopting, if that is their choice. Once the couple has reached resolution (whether to live without children, adopt a child, or become foster parents), they can finally put that chapter of their lives behind them. Don't try to open that chapter again.



Monday, 18 November 2013

#3~ Nov 18: Infertility/ A Guide For Family And Friends

This entry (and entry #4) are probably the most important for friends and family to gain understanding and learn how to show support. It will explain why we feel crazy and alone, why we have intense mood swings, why we are over sensitive and how everything makes us angry in the midst of things and how those feelings spill into everything else in our lives.. Don't skip this one if you know someone who struggles with this, you might learn something...

The following are not my words but what Jody shares (in blue) is profound and I have to say that 90% of what she shares could have been written by me.. The only main difference between Jody and I was that I wasn't angry with my body, I was angry with Dwayne's body (not blaming him, just stating a fact). 2008-2011 were probably my worst years.. This “almost pregnancy” threw me for a good loop back to those years, not a nice feeling..

I am okay now but feeling that dark side for a few days motivated me to write this, and for that I am grateful! Reading that guide 4 years ago would have been helpful in helping me see that I wasn't alone or going crazy, it would have validated my fears and helped people close to me understand what was going on.. I wish I could give this guide to everyone who suffers from this.. I think it would help them..

Reference and credit: The author of this material below, Jody Early, frequently felt the need for a brochure like this one during her own eleven year infertility struggle. She experienced three pregnancy losses, one in each trimester, and eventually the premature births of her two sons. She continues to be a peer counsellor for those working through infertility.

More from me after this guide!

INFERTILITY: A GUIDE FOR FAMILY AND FRIENDS by Jody Earle

I want to share my feelings about infertility with you because I want you to understand my struggle. I know that understanding infertility is difficult; there are times when it seems even I don't understand. This struggle has provoked intense and unfamiliar feelings in me and I fear that my reactions to theses feelings might be misunderstood. I hope my ability to cope and your ability to understand will improve as I share my feelings with you. I want you to understand.

You may describe me this way: obsessed, moody, helpless, depressed, envious, too serious, obnoxious, aggressive, antagonistic, and cynical. These aren't very admirable traits; no wonder your understanding of my infertility is difficult. I prefer to describe me this way: confused, rushed and impatient, afraid, isolated and alone, guilty and ashamed, angry, sad and helpless, and unsettled.

My infertility makes me feel confused. I always assumed I was fertile. I've spent years avoiding pregnancy and now it seems ironic that I can't conceive.

My infertility makes me feel rushed and impatient. I learned of my infertility only after I'd been trying to become pregnant for some time. My life plan suddenly is behind schedule. I waited to become a parent and now I must wait again...

My infertility makes me feel afraid. Infertility is full of unknowns, and I'm frightened because I need some definite answers. How long will this last?

My infertility makes me feel isolated and alone. Reminders of babies are everywhere. I must be the only one enduring this invisible curse. I stay away from others because everything makes me hurt.

My infertility makes me feel guilty and ashamed. Frequently I forget that infertility is a medical problem and should be treated as one. Infertility destroys my self esteem and I feel like a failure. Why am I being punished? What did I do to deserve this? Am I not worthy of a baby?

My infertility makes me feel angry. Everything makes me angry, and I know much of my anger is misdirected. I'm angry at my body because it has betrayed me even though I've always taken care of it. I'm angry at my partner because we can't seem to feel the same about infertility at the same time.

My financial resources may determine my family size. My insurance company isn't cooperative, and I must make so many sacrifices to pay the medical bills. I can’t miss any more work or I'll lose my job. I can't go to a specialist because it means more travel time, more missed work, and greater expenses. Finally, I'm angry at everyone else. Everyone has opinions about my inability to become a parent. Everyone has easy solutions. Everyone seems to know too little and say too much.

My infertility makes me feel sad and hopeless. Infertility feels like I've lost my future, and no one knows of my sadness. I feel helpless; Infertility robs me of my energy. I've never cried so much nor so easily. I'm sad that my infertility places my marriage under so much strain...

My infertility makes me feel unsettled. My life is on hold.. Making decisions about my immediate and my long term future seems impossible. I can't decide about education, career, purchasing a home, pursuing a hobby, getting a pet, vacations, business trips and house guests. The more I struggle with my infertility, the less control I have...

Occasionally I feel my panic subside. I'm learning some helpful ways to cope; I'm now convinced I'm not crazy, and I believe I'll survive. I'm learning to listen to my body and to be assertive, not aggressive, about my needs. I'm realizing that good medical care and good emotional care are not necessarily found in the same place. I'm trying to be more than an infertile person, gaining enthusiasm, hopefulness, and zest for life.

You can help me. I know that you care about me and I know my infertility affects our relationship. My sadness causes you sadness; what hurts me hurts you too. I believe we can help each other through this sadness. Individually we both seem quite powerless, but together we can be stronger. Maybe some of these hints will help us to better understand infertility.

I need you to be a listener. Talking about my struggle helps me to make decisions. Let me know you are available for me. It's difficult for me to expose my private thoughts if you are rushed or have a deadline for the end of our conversation. Please don't tell me of all the worse things that have happened to others or how easily someone else's infertility was solved...

I need you to be supportive. Understand that my decisions aren't made casually; I've agonized over them. Remind me that you respect these decisions, even if you disagree with them, because you know they are made carefully...

I need you to be comfortable with me, and then I also will feel more comfortable. Talking about infertility sometimes feels awkward. Are you worried you might say the wrong thing? Share those feelings with me. Ask me if I want to talk. Sometimes I will want to, and sometimes I wont, but it will remind me that you care.

I need you to be sensitive. Although I may joke about infertility to help myself cope, it doesn’t seem as funny when others joke about it. Please don't tease me with remarks like, “You don't seem to know how to do it.” Don’t trivialize my struggle by saying, “I'd be glad to give you one of my kids.” It's no comfort to hear empty reassurance like “You'll be a parent by this time next year”... (I am adding this last one: Don't tell me “well at least you have Mia”. That does not help..)

I need you to be honest with me. Let me know that you may need time to adjust to some of my decisions. I also needed adjustment time. If there are things you don't understand, say so..

I need you to be informed. Your advice and suggestions are only frustrating to me if they aren’t based on fact. Be well informed so you can educate others when they make remarks based on myths. Don't let anyone tell you that my infertility will be cured if I relax and adopt. Don't tell me this is God's will. Don’t ask me to justify my need to parent...

I need you to be patient. Remember that working through infertility is a process. It takes time. There are no guarantees, no package deals, no completed kits, no one right answer, and no “quickie” choices...

I need you to be strengthening by boosting my self-esteem. My sense of worthlessness hampers my ability to take charge.

Encourage me to maintain my sense of humor; guide me to find joys. Celebrate with me my successes, even ones as small as making it through a medical appointment without crying. Remind me that I am more than an infertile person. Help me by sharing your strength.

Eventually I will be beyond the struggle of infertility. I know my infertility will never completely go away because it will change my life. I won't be able to return to the person I was before infertility, but I also will no longer be controlled by this struggle. I will leave this struggle behind me, and from that I will have improved my skills for empathy, patience, resilience, forgiveness, decision making, and self assessment. I feel grateful that you are tyring to ease my journey through this infertility struggle by giving me your understanding.

 

I am in a different spot now, total different mind set.. I don't hurt like I used to.. I'm okay with what I have but I haven't given up on more... I have faith that there is a plan for me. If it is supposed to happen, it will happen.. There is a reason for all things.. I know that..





#2~ Nov 18: Our Story

Our Story: Welcome back!

~ Jan 2004: Dwayne and I were married. A few months later we decided we wanted to start having children.. (We wanted 4/5 so we should start now!) It took us 6 months to conceive.



  ~ Aug 2005: Mia was born. I had a C-section and needed to wait 6 months before getting pregnant again.. We started trying as soon as we had the okay... We were told many things by doctors... Reasons why it wasn't happening.. Relax.. blablabla... You know the drill if you are living this too...


~ 2006: The dreaded hope and despair cycles started with every single menstruation cycle.

~ Nov 2007: Our doctor finally agreed to test us for problems. Dwayne was referred to a Urologist where we were told that our chance of conceiving naturally was near zero, he pretty much told us to forget the idea. Issues with sperm count/motility. Our two options were adoption or In vitro (IVF). My world crumbled.

~ Mar 2008: We decided to do IVF, we met with the Calgary clinic doctors who told us which route we would need to take and we started on their long waiting list.

~ Oct 2008: Waiting list moving forward. I had to undergo a bunch of medical tests just to make sure all was in order on my side of things.

~ Mar 2009: We were selected to do IVF. (Meaning we were at the top of the waiting list full of other couples also waiting to try IVF) From what I have heard from others, the system is much slower in Canada.. We turned it down. At this point Dwayne's disease was at its worst. We had decided to operate and get rid of the sick organs so that he could have a chance at some normalcy in his life. And when we got the call that we could start IVF, we were also waiting for Dwayne's first surgery (supposed to happen in April), couldn't do both at once (physically and mentally).

~ Jul 2009: We were selected to do IVF again. Turned it down again.. Still waiting for Dwayne's surgery. Agony on many levels.

~ October 2009: Dwayne finally had surgery. (The below pics are of him after 20 days in the hospital.. Yikes! Skin and bones)... He had another surgery in 2012.. All is well now!
  


If you wait longer than one year from fertility tests to actual process, you have to redo all of the tests to remain on the waiting list for In vitro. At this point I couldn't do it.. It wasn't in me to have invasive probing again when I knew my body was totally fine and wasn't the issue. Our marriage was suffering for many reasons. We didn't want to add more stress and pay $12,000 (that we didn't have) to have a baby with the risk that our marriage might fall apart after the fact. We dropped the idea.


~ We attended a few adoption seminars, I talked with friends who had adopted, and we looked into that route but it never felt right for us so we dropped that idea too.

By the start of 2011 the hope and despair cycles continued but somehow I was able to manage them better. I wasn't angry anymore. I wasn't asking “why” anymore, I wasn't in pain at the sight of a pregnant woman, I started holding other people's babies again, I stopped isolating. The pain of this trial wasn't as strong these past 2 years.. We were hopeful that we could make it happen. Mia was a miracle baby (we didn't know it at the time, we know it now)... We thought maybe we could have two miracles. But things never did happen. I learned to be okay with my situation. I relied heavily on my faith to get me through and really started to feel happy again and content with whatever might or might not come...

But then the unthinkable happened. This past week (Nov 2013) I experienced the longest “hope” cycle ever. I thought I was pregnant.. I was almost 2 weeks late and seemed to have all of the signs. I am never late. I am on the dot regular... Had an apt with Dr to do blood work b/c urine test showed negative (it also showed negative with Mia)... But the blood results came back negative too (and my period started the next day (on Nov 15))! The despair part of this cycle hit us like a ton of bricks.

I was doing fine before this 2 weeks late business. But this past week I was sent down a spiral that seemed too familiar, a spiral I hadn't visited in a couple of years. This event is what prompted me to write this entry.

This event reminded me of my life a few years ago. It took me back to those dark spots for a couple of days. It took me back to the pain. It took me back to my reactions and reminded me of how I would act, how I tried to protect myself, how I hid. It took me back to the envy I felt when I saw parents with their many kids.. It took me back to the intense jealousy at the sight of a pregnant body. It took me back to the anger I felt when I heard expecting mothers complaining about ailments pregnancies bring (yes growing a baby can be uncomfortable but do you know how lucky I think you are to have those side effects?)... Family members and friends saw me reacting a certain way, they saw my external shell, they saw the external symptoms but I never showed the real thing. Most people had no idea, hence the invisible curse... (Having said that, I am happy for you who are able to conceive... I don't want to take your joy away, you should be happy, I would be too...) But in the past if I have cried at the sight of your newborn, now you know why... If I have turned down the chance to hold your baby for a while, you will also know why... If I didn't attend baby showers, that's probably why too..

I am surprised that I was able to bounce back so quickly this time though. I had a few terrible days but now I am almost feeling normal again. Not knowing and hoping was the worse thing. Every day added some hope... Now I know.. I am not pregnant, nothing new, my life goes on as always. In the past I would sink into mini depressions after each cycle... I never want to go there again...

I know that others are experiencing that too. They are probably doing what I used to do... I have spoken to a few others who deal with this and they too are very familiar with the hope/despair agony!

Sometimes in our hardships we isolate, we get angry, we doubt, we sink deeper, we turn away from help, we shrivel... In the next entry I will share a guide that might help you understand a loved one who is struggling with this too. That section is the most important part of these first three entries...

Saturday, 16 November 2013

#1~ Nov 16: Taking Infertility Out of the Dark

Disclaimer: Some people enjoy surface conversations better than the deeper stuff, especially on social media.. And that's okay. But if you are one of these people then this blog may be too much for you... You may not care to keep on reading.. Just saying.. Now for the rest of you, here's A Glimpse Into Parts of My World


I want to talk about something that has afflicted me for years. We all have stuff we need to deal with. It is part of life. Some things are easier than others, some things go away, some things don't. I believe that we will all have experiences in life that are defining moments. Things that will either make us or break us.. Dwayne and I have had a few major trials in our years together that were just that.. Trials that seemed insurmountable. I have mentioned 2 of them on Facebook here and there. Dwayne's Ulcerative Colitis is one of them. Our battle with infertility is the other one.


You who know us know that Dwayne's Colitis is now gone. He is now 3 organs lighter and feeling GREAT... That's behind us. What I would like to talk about is our infertility struggle.


I don't think that I am sharing my dirty laundry in doing so. This isn't talking about someone's mistakes or a consequence to someone's actions, this is about a trial that was handed to us, a trial we must bare. It just is.. 


I have been on a journey these past two years. A journey that has opened my eyes. A journey that has made me desire more courage, authenticity, vulnerability, a journey that made me realize that THERE IS NO REASON TO FEEL ASHAMED because we can't get pregnant and no reason why we can't talk about it openly. I want to speak up. This journey has taken my anger away, it has calmed me.



I think the reason this topic is taboo and kept in the dark is b/c it is so misunderstood.
                             

I've wanted to talk about this topic for a few months but didn't know how to go about it and the timing never felt right but it does now.. You may be asking yourself why I want to talk about this? What's the point? Why the need? I have felt alone in this. I have felt misunderstood and have shed many tears in silence.. The thing is, I am not alone, many others deal with what I have to deal with and they do it in silence too. Let's break that silence!

I have come across an article that has put words to how I was feeling and I want to share those words. Maybe you don't suffer from this, but maybe you know someone who does. Infertility is “crazy making”... "You may describe people who struggle with infertility this way: obsessed, moody, helpless, depressed, envious, too serious, obnoxious, aggressive, antagonistic, and cynical. These aren't very admirable traits; no wonder your understanding of our infertility is difficult. We would prefer to describe ourselves this way: confused, rushed and impatient, afraid, isolated and alone, guilty and ashamed, angry, sad and helpless, and unsettled." ( Article continued in third entry).



Writing all of this down is therapeutic... Sharing and hearing that others get what I am saying is great.. Hearing people tell me that they will show more compassion towards someone b/c of what I wrote, that feels amazing..


Some of you were here when this issue first surfaced and you know the pain I have felt in past years. Some of you have been around but have no idea. I want to share my story with you, on the next entry.